Disabled Problems - Tumblr Posts

2 years ago

I don’t think I could handle working full time bc of my health problems, but I’m not disabled enough to get any help for it. So basically I’m screwed.


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5 years ago

Limited Food

CW: COVID-19, medical issues, mild mention of blood

What has probably been hardest on me in the last.. however long this has been, has been my dietary restrictions and not being able to abide by them. My main Dr. hasn't been able to pinpoint why I’m in so my pain in my abdomen, or why I sometimes pass blood. I have a gastroenterology appointment in June, but who knows if that will still happen. In the mean time, I’m avoiding anything that makes it worse.This includes, but is not limited to: meat, lactose, sugars, salts, and oils/grease. Being low income, no access to regularly available food banks, and limited cold storage, major depression after a family members death, and major body pain flares, I’ve mostly been living off school snack type food like granola bars. Which have not been kind to my system. I supplement with meal replacement when soy milk is available. I feel awful.  I really wish more help options were easily accessible 


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1 year ago

You know what? I hate how most people think I'm 100% dependant on my mobility aids. Sure I hobble around with my cane and scuttle on my crutches, but I'm not helpless. They're so surprised when they find out I don't use them at home, or that they can hurt as bad as the disability itself, or that my dependence on them is a fluid thing and changes day by day. We have this idea of how disabled people should be— bound to their aids, miserable, defenseless. These ideas only helped me reject the idea of something wrong with me longer, because I didn't look like those people. Most of the time now, I use my aids when I don't need them just because I feel like I have to look "disabled enough" for people. We've built expectations for disabilities, which is funny, cause you couldn't have picked a more unpredictable thing.

I don't expect everyone to be educated, there are so much more pressing things to worry about, but when you have a friend or family member that's disabled, the least you can do is glance at a few resources online or ask them about it. I'm just so sick of family treating this like a big deal, or nurses holding on to me like a toddler still learning to walk when I need to get on a scale, or co-workers treating my cane laying around like a reverent item i will strike them down for disgracing. It's a piece of shitty metal y'all. I don't have a sliver of trust for that thing. Complaining about how cheaply made a lot of aids are to be priced expensive is a whole other post.

I'm just saying, if there was an immediate danger, you won't see me struggling to get away. I'll have already thrown my cane at them and ran. Yes, I have a disability, but I am not weak. You think these beefy arms are for show? You think this hunk of metal I lug around is soft? You think I made it to the end of the day fighting tooth and nail just to sit down and die? I'm fucking feral, fight me.


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