Functional Neurological Disorder - Tumblr Posts

A few of the potential physical effects of PTSD on the body:

Chronic pain (like fibromyalgia, crps, myofascial pain syndrome)

Chronic fatigue

Autoimmune diseases

Diabetes

Arthritis

Neurological disorders like FND (Paralysation is a possibility with FND, so yes, PTSD could potentially mean you would need a wheelchair).

Non epileptic seizures in the form of dissociations.

Gastrointestinal disorders like IBS

Dysautonomic disorders like POTS

That's not to say that PTSD always cause these problems, or these issues can only be caused by PTSD. It is however a potential.

(Still a good doctor should rule out other physical causes first before jumping on the PTSD/ "psychosomatic" bandwagon).

Also note, that just because PTSD might be causing your problems, that doesn't mean that they're not real. They are. But instead of a hardware problem, it's a software problem. Still very real, still not something that you're making up. The cause of it, is a sick brain in that case.

i wish there was more of a community for FND on here. this disorder is scary and sudden and feels like every neurological symptom in a trench coat (from non epileptic seizures to tics to chronic fatigue to gait difficulties to functional paralysis—)

so if anyone else seeing this has FND too, just know you’re not alone. it’s supposedly such a common disorder yet we’re all isolated from each other. sending virtual hugs to anyone struggling this disability pride month

I mainly use @welcome-to-the-agender-agenda. I have FND and DID. Happy to be hopefully relatable :)

If you have FND and also any type of dissociative disorder could you please interact with this (even just a like). I’m desperately looking for more blogs I can relate to!

people talk a lot about how annoying it is to have people unnecessarily open doors for you as a wheelchair user and that is absolutely a thing

but i’ve also had people pretend not to see me coming and just shut the door in my face. i’ve had to ram a door open with my feet to the point where my mum called the school and told them to remind classmates to give me a hand with double doors because she was so worried. abled people either do everything for you and infantilise you or ignore you and pretend you don’t exist and both are equally ableist.

Sometimes I don’t think people get that chronic means chronic. It means forever. I’m going to be stuck with this for the rest of my life and I’ve had to learn to make peace with that myself. Telling me ‘hope you get better soon’ and ‘it won’t always be like this’ is pointless because you’ve completely ignored the definition of chronic illness.

People need to learn the difference between tired and fatigued.

Why is it that when you have a chronic illness everyone insists on making it about them and the inconvenience it causes them and not about the fact you have a lifelong disability?

Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.

Shout out to young disabled people. We exist.

Every so often I have the strong urge to drop the act and collapse of exhaustion and start crying about how much pain I’m in just to prove to people that this is my everyday and my illness is agonisingly real so stop accusing me of ignoring your texts or not caring enough to go to your event.

I’m trying really really hard.

Screw it.

I got dressed today and I’m fucking proud of myself. I brushed my teeth and I’m proud of myself. I got out of bed and I’m proud of myself. No achievement is insignificant. Things people so often take for granted are accomplishments on their own especially when you can’t take them for granted anymore.

Chronic pain is im fine im fine im fine little ouchy im fine im fine HOLY FUCKING SHIT OW MAKE IT STOP little ouchy im fine im fine im fine

My brain doesn’t work, my body doesn’t work, my emotions are disregulated, my goddamn personality is fractured WHERE IS THE RESET BUTTON

From the very depths of my soul and the bottom of my heart I tell you this:

OW

Nothing like an impromptu midnight pain relief bath during a flare up

You don’t have to be on the brink of collapse to use your mobility aids.

You don’t need to be limping to use your cane. You don’t need to be staggering to use your crutches. You don’t need to be falling over to use your rollater. You don’t need to be too weak to stand to use your wheelchair.

They’re there to help you and you are never too “strong” to be using something that helps you.

Health is a myth and you cannot convince me otherwise

People think they’re trying to be kind when they say “it’ll get better” but they aren’t.

It’s a punch to the gut whenever someone tells me “it’ll get better” because I’m chronically ill and it won’t. All you’ve done is try to make yourself feel better about my lifelong suffering.

A lot of my seeing disabled people in the media used to be immediately followed with “yeah this is stereotypical but at least there’s a reminder that we exist”.

Fuck that. Disabled people are treated like shit in the media and you never see them (except amputees but they have fully functioning limbs that just look robotic rather than actual prosthetics). Just because they give us representation doesn’t mean we should be grateful for the overused tropes, the inaccuracy and the general ableism.

Be angry. We have the goddamn right.

Having severe anxiety and chronic illness is constantly trying to figure out if you’re spiralling or this is actually not normal for most people but you feel like shit 24/7 so you’ve just been ignoring for the past four years

Having a chronic illness makes you need a rest from resting