I Hate Being Disabled - Tumblr Posts
Ticked off rn.
Had to change that email on my Dexcom to match an email they had on file. Dexcom app wouldn’t let me.
Had to delete said app.
Got the email changed! Now can’t get on the app because I need a sensor, which was what I needed to change the email for-- because they wouldn’t approve my sensors OR my new transmitter without that email being the same (for insurance reasons, I guess??).
Have to call them for a fourth time tomorrow to sort this shit out, because they close at 5.
I want to cry. Or eat a whole cake in defiance.
Fun fact: the word 'chronic' means it's lifelong! and the phrase 'chronic illness' means I'm stuck with it until it takes me out, or I take me out. So, to the woman bothering me at a close family friend's funeral today about 'whether it goes away' can shut the hell up. Chronic means I'm stuck with it. Telling me I can think my way out of it when I have things physically wrong with my body will not do anything. No, it's not going away, and praying and trying to force me out of my wheelchair won't do jack-shit (except make me want to break your nose). Trust me, I have tried almost everything under the sun by now.
Besides, I've come to the conclusion if god/s exist, they decided I'm better used as a disability advocate than wasting their precious time on fixing the fact I'm in crippling pain constantly :DDD
Currently 10 doctors deep into trying to find a doctor with experience with my birth defect/disability. We love being disabled/s