Consider-your-potatoes-mashed - Ouch

It’s the fact that my heart rate even in meds gets up to almost 200 just when I’m walking around or doing stuff literally what the fuck. I hate POTS and Dysautonomia in general. Fuck this shit honestly why can’t I just ya know function???

Got some hinged knee braces (from Amazon) and honestly they help some but I can’t adjust how far back they can go so they stop at 180 but to keep myself from hyperextending I would need a smaller ROM but they at least do something. My main problem is that they don’t fucking stay up! Granted I’ve never had a brace that stayed up on me but still it’s annoying and kinda pisses me off cause it just means I have to constantly adjust them and pull them up. Also when I sit the top of the brace majorly gaps. Like it turns into a fucking handle basically.

Also they are so far from sensory friendly because of how much they slide around.

All that said they’re helpful for now and hopefully I’ll be able to get custom braces soon if my insurance will approve them (I really hope they do soon because fuck my knees suck). Being disabled and being fat (1) and having big thighs as a result really makes this shit hard because prefabricated braces don’t fit me.

Also the socks I’m wearing are from Not Your Grandma’s and they’re compression socks and they’re fucking amazing and so comfortable 10/10 honestly. They’re about £15 (idk what that converts to in $ I think it’s like $17??? I’m American (eww) but the company is from the UK) so not cheep but the material and patterns are so good!!! Highly recommend. I have their dinosaur, shark, and sea life patterned socks.

(1) I really don’t know if I qualify as fat. I feel like I do but I’ve also been told I’m not “fat enough” which is ridiculous like maybe I’m fat lite? Or something idk either way I’m a large person.

Whelp my knee braces got denied again...

Why the fuck does insurance get to dictate what I need vs don’t need?????

I just want to be able to walk without being in pain. Is that really so much to ask??

I love my forearm crutches but damn they make my forearms tired so fast especially when I’m having a flair day (both pots and pain) like today. I’m so glad I have them but holy shit it’s exhausting.

Okay so my left shoulder has been really fucked for the last several months and it hurts really bad and clicks and subluxes a lot too. All this keeps me from being able to fully use my arms and makes using my crutches harder. Does anyone have any suggestions for how to help it feel better so I can get its full range of motion back?