Not meddically recognized but talking to a therapist that knows about DID/OSDD and doing that type of work
314 posts
Interwebois - Interweb Bois - Tumblr Blog
9/01/2024 Check Out Our New Video🧡
Lighthouse My Virtual Escape💙 Cover🎸
For Us we don’t all feel connected to everything in source and things we do usually has some real life our body reason you know yeah
Sorry for the audio trouble
#So True , 8/26/2024
Sometimes being a system feels like being pulled in a dozen different directions when no one can agree on how to react to something. If our partner doesn’t reply to us for days, the protector wants to tear into them for neglecting us like our abusers always did, the diplomat wants to try to talk things through, the anxious people pleaser wants to stay quiet in case they break up with us, the uninhibited one wants to be upfront about our feelings, the emotional fragments want to hide and cry and not do anything about it, the system kids just want our partner to comfort us and make it better.
No wonder I’ve struggled all my life to make a single freaking decision under any circumstances.
A lot can still happen this year. Trust God.
System hottake! I see so much emphasis on the validity of fictives, (which is true! Fictives are a valid thing!) but honestly most people I see are fine with fictives in the DIDOSDD spaces.
You know what I very rarely see validity posts and “it’s ok to have and is in fact a very normal part of the disorder” posts for?
Factives!!! Especially of peoples abusers, famous people, historical figures, and so on!
Yes Fictives are valid! But honestly I see way more hate and vitriol towards factives, especially if they are of famous people.
.
8/23/2024 A Street Cat Named Bob 🐈 rewatched this about a year ago and posted about it so rewatched it yesterday and today :)
I only ever see DID discussed as purely covert or overt, but never anything about systems with mixed presentation.
My system is maybe 90% covert, where most alters mask as the host. And then there are a few who have wildly different outward fashion choices, styles of speaking, and want people to know they’re someone other than the host.
It’s kind of chaotic when most alters are trying to stay on the down low and then Extremely Goth Alter shows up in Tripp pants and an oversized metal hoodie I didn’t even know we owned .-.
Reminder
DID isn't just having fun people in your head
Along with shifts in personality, it's often times:
amnesia: 'waking up' with no memory of what's going on
travelling and having no idea where you are or how you got there
dizziness
confusion
spacing out
headaches
feeling broken & worthless
fear
not knowing why or how you're wearing what you're wearing
nausea
pain
anxiety
finding things amongst your belongings you don't remember acquiring
time loss
depression
suicidal ideation & action
spikes in inexplicable emotion, especially anger, fear, and shame
body and voice dysphoria
depersonalization & derealisation
loss of control
hearing voices
finding injuries you don't remember getting
self harm
not recognising friends/family/colleagues
forgetting important events (birthdays, parties, graduations etc)
mood shifts with seemingly no trigger
finding notes in similar handwriting but something about it is slightly off
flashbacks: somatic flashbacks, nightmares, split second flashbacks to 'little things' but not getting more detail
bed wetting
age regression
inadvertently lying, or being questioned if you have
feeling like your body isn't yours
knowing something is wrong, but not what
wondering why your body doesn't align with your perceived sex (for alters whose gender/sex don't align with the body)
watching your body do things and having no control over it (feeling like a puppet or like playing a video-game in 3rd person)
mass fluctuations in libido: fluctuations from hypersexual to zero sexual desire
not being sure if things really happened, or whether you imagined/thought about them
identity confusion
+ many more
I have two book recommendations DID experiences: "All Of Me" by Kim Noble, and "The Girl in The Green Dress" by Jeni Haynes. Please check trigger warnings.
8/19/2024 Today Rewatching Ratatouille 🐀🇫🇷 and is it just be or how Linguini & Remy feels System coded 🤔
8/19/2024 Love this Video Game 🎮 Star Wars 💫
"It's over." STAR WARS JEDI: FALLEN ORDER (2019)
8/13/2024 Got it Yesterday💛 while reading Proverbs but so adorbs 🥰 from got before it sold out | Moon Knight 🌙🤎 (BB-8🤍🧡 in the background though haha 😂 :) ‘When danger is here, Steven Grant has no fear…’
I know right 🥹 Literally bawl my eyes out 😭 when seeing this because was going through some though moments and this reminded me that it’s ok. Thank You :) 8/08/2024
''I will protect you.''
''I will protect you.''
My heart will breaks into pieces if there's no MK season 2 announced on D23 😭
Polyfragmented Survey Results!
I'm so sorry it took me so long to get this out...
This post cannot contain all of the responses, so check the reblogs for the rest of the responses that weren't originally included in this post alone.
Ages ago, I put out a polyfragmented system experiences survey (you won't be able to see the questions with that link, it just links to the survey, but since it's been down, it just says thanks for taking the survey lol). It has taken me an extremely long time to finally get this out there.
TOTAL RESPONSES: 148 (1 person was not a polyfragmented system)
(By the way: the reason I had the first question ask whether the person taking the survey is a polyfragmented system is specifically because I wanted to make sure no non-polyfragmented systems were taking the survey because a non-polyfrag system took the previous survey before I updated it. To clear the confusion why I had that question).
Some disclaimers because I feel they are important to remember:
I'm obviously not a professional.
This survey is not professional.
This survey is biased towards Tumblr users.
While this survey can definitely shed light onto common polyfragmented system experiences, it's just not a professional survey and does have its own flaws.
Q1: Are you polyfragmented? - (148 responses)
73.6%, 109 people said “Yes”
24.7%, 36 people said “I'm not sure/I'm questioning if I'm polyfragmented”
1.4%, 2 people gave other responses
0.7%, 1 person said “No”
Q2: What does the term 'polyfragmented' mean to you personally? How do you define it/understand it?- (148 responses)
Most responses mentioned things such as: many alters, complex structure, many fragments, complex splitting patterns, frequent splitting, and more. Most people said the same/similar things, so it isn't worth sharing them, so I'll share responses I personally liked/interesting responses:
Well when we were first introduced to the term it was presented as "A system who had a large alter count, more around the hundreds" but now have come to learn that unfortunately the DID community had no authority or official language or terms and most of the community sees just about everything as "its whatever it means to you". Something that is just increasing in causing issues and fighting and not really helping at all and has caused quite a big toxic positivity movement. There is no official definition of polyfragmentation and this makes it almost meaningless. If you define it as a large number count others will lambast you for "getting it wrong", then others say its "complex" systems. What dose THAT mean? Who defines what complex means? Then it was (for about a week) claimed to be a RACOMA term, but that was quickly dropped as people got angry, again, over the community trying to define a simple word. People claiming "gatekeeping" and "stealing terms" I think its valid to want to define something yourself however if ALL of our words are just "defined by whoever is using it" dose that not make them meaningless? All this to say, I define Polyfragmented as a system who has 50+ alters as well as a large and complex inner structure (not necessarily an innerworld) that often occurs MOSTLY due to extreme traumas.
polyfragmentation to me is more than having a lot of distinct personalities or a lot of alters. its more about the opposite, really: not knowing yourself. you become so disconnected from "you" that you only focus about finding the best path that leads you to escaping the pain and the hurt. and when you're out, you dont know what to do because "you" became obsolete. its a process of figuring yourself out after that, and understanding how you are working with yourself to be "you."
Q3: Are you DIAGNOSED/MEDICALLY RECOGNIZED? - (148 responses)
34.5%, 51 people said “I am not diagnosed or medically recognized with DID or OSDD”
31.8%, 47 people said “I am diagnosed/medically recognized with DID”
12.2%, 18 people said “Started out self-diagnosed and then got officially diagnosed with
DID/OSDD”
5.4%, 8 people said “I am diagnosed/medically recognized with a different dissociative
disorder, but NOT DID or OSDD (however I still suspect/believe I have DID/OSDD)”
2%, 3 people said “I am diagnosed/medically recognized with OSDD”
21 people gave other responses
Q4: Are you SELF-DIAGNOSED with DID or OSDD? (Or suspect that you have DID or OSDD) - (146 responses)
49.3%, 73 people said “Self-diagnosed/suspect DID”
30.4%, 45 people said “I am not self-diagnosed”
8.1%, 12 people said “Self-diagnosed/suspect DID/OSDD (not sure which one)”
4.1%, 6 people said “Self-diagnosed/suspect OSDD”
12 people gave other responses
Q5: How old are you? - (148 responses)
4.7%, 7 people were 13-15
17.6%, 26 people were 16-17
40.5%, 60 people were 18-23
28.4%, 42 people were 24-29
2%, 3 people were 30-40
0.7%, 1 person was 41+
6.1%, 9 people preferred not to say/skip
Q6: Are you a person of color? - (148 responses, multiple answers)
71.6%, 106 people said “No”
18.2%, 27 people said “Yes”
6.1%, 9 people said “Unsure”
15 people (also) gave other responses
Q7: Do you happen to be intersex? - (147 responses)
64.6%, 95 people said “No”
13.6%, 20 people said “I suspect it, but I'm not sure (can't get diagnosed/etc.)”
11.6%, 17 people said “Yes”
8.8%, 13 people said “Unsure”
1 person gave another response
Q8: Select any that apply to you CURRENTLY (DIAGNOSED/MEDICALLY RECOGNIZED ONLY) (this is not a comprehensive list) - (129 responses)
Depression – 72.1%, 93 people
Bipolar Disorder (I/II) – 15.5%, 20 people
Anxiety (General, Social, etc.) – 81.4%, 105 people
OCD – 25.6%, 33 people
Specific Phobia(s) – 17.8%, 23 people
Anorexia Nervosa – 11.6%, 15 people
Bulimia Nervosa – 1.6%, 2 people
Binge-Eating Disorder – 3.1%, 4 people
(ARFID) Avoidant-Restrictive Food Intake Disorder – 10.1%, 13 people
Pica – 3.9%, 5 people
Unspecified/Unknown/Other Eating Disorder – 11.6%, 15 people
PTSD/CPTSD – 76.7%, 99 people
Psychosis – 18.6%, 24 people
Schizophrenia – 7%, 9 people
Autism Spectrum Disorder – 50.4%, 65 people
ADHD – 58.9%, 76 people
Tourette's Syndrome (or other tic disorder) – 11.6%, 15 people
Dyslexia – 7%, 9 people
Dyscalculia – 0.8%, 1 person
Borderline Personality Disorder – 24.8%, 32 people
Avoidant Personality Disorder – 7.8%, 10 people
Dependent Personality Disorder – 2.3%, 3 people
Obsessive-Compulsive Personality Disorder – 2.3%, 3 people
Histrionic Personality Disorder – 1.6%, 2 people
Paranoid Personality Disorder – 1.6%, 2 people
Schizoid Personality Disorder – 1.6%, 2 people
Narcissistic Personality Disorder – 5.4%, 7 people
Antisocial Personality Disorder – 4.7%, 6 People
Unspecified/Unknown/Other Personality Disorder (/mixed PD traits) – 8.5%, 11 people
Q9: Select any that apply to you CURRENTLY (SELF-DIAGNOSED ONLY) (this is not a comprehensive list) - (126 responses, multiple answers)
Depression – 14.1%, 18 people
Bipolar Disorder (I/II) – 3.1%, 4 people
Anxiety (General, Social, etc.) – 14.8%, 19 people
OCD – 25.8%, 33 people
Specific Phobia(s) –15.6%, 20 people
Anorexia Nervosa – 8.6%, 11 people
Bulimia Nervosa – 3.1%, 4 people
Binge-Eating Disorder – 3.1%, 4 people
(ARFID) Avoidant-Restrictive Food Intake Disorder – 14.1%, 18 people
Pica – 6.3%, 8 people
Unspecified/Unknown/Other Eating Disorder – 22.7%, 29 people
PTSD/CPTSD – 34.4%, 44 people
Psychosis – 22.7%, 29 people
Schizophrenia – 7.8%, 10 people
Autism Spectrum Disorder – 50.8%, 65 people
ADHD – 28.1%, 36 people
Tourette's Syndrome (or other tic disorder) – 10.9%, 14 people
Dyslexia – 13.3%, 17 people
Dyscalculia – 2.3%, 3 people
Borderline Personality Disorder – 19.5%, 25 people
Avoidant Personality Disorder – 8.6%, 11 people
Dependent Personality Disorder – 3.9%, 5 people
Obsessive-Compulsive Personality Disorder – 3.1%, 4 people
Histrionic Personality Disorder – 6.3%, 8 people
Paranoid Personality Disorder – 8.6%, 11 people
Schizoid Personality Disorder – 3.1%, 4 people
Narcissistic Personality Disorder – 17.2%, 22 people
Antisocial Personality Disorder – 10.2%, 13 people
Unspecified/Unknown/Other Personality Disorder (/mixed PD traits) – 16.4%, 21 people
Q10: Please select any that apply to you, either currently or at any point in your life. (This is not a comprehensive list)
75.9%, 104 people reported Chronic pain
72.3%, 99 people reported Chronic fatigue
19%, 26 people reported Fibromyalgia
42.3%, 58 people reported (IBS) Irritable Bowel Syndrome (and/or other digestive issues)
0.7%, 1 person reported (IBD) Inflammatory Bowel Disease (Crohn's or Ulcerative Colitis)
30.7%, 42 people reported GERD (and/or other acid reflux/heartburn/etc. issues)
51.1%, 70 people reported Allergy/intolerance (lactose intolerance, peanut allergy, latex allergy, etc.)
4.4%, 6 people reported Epilepsy
2.2%, 3 people reported Diabetes
10.2%, 14 people reported Arthritis
4.4%, 6 people reported Celiac Disease
1.5%, 2 people reported Lupus
4.4%, 6 people reported Rheumatoid Arthritis
2.9%, 4 people reported Psoriasis
0%, No one reported Scleroderma
13.1%, 18 people reported Scoliosis
8%, 11 people reported Endometriosis
19%, 26 people reported (PMDD) Premenstrual Dysphoric Disorder
1.5%, 2 people reported Cancer (any kind)
2.9%, 4 people reported HIV/AIDS and/or other STD(s)/STI(s)
33.6%, 46 people reported Asthma
5.1%, 7 people reported Costochondritis
1.5%, 2 people reported COPD
8.8%, 12 people reported Sleep apnea
5.1%, 7 people reported Narcolepsy
2.2%, 3 people reported POTS
1.5%, 2 people reported PCOS
Q11: Do you feel like OSDD systems and DID systems should combine into one disorder, where there is a "dissociative identity disorder" kind of spectrum, rather than the two separate diagnoses? (OSDD would still exist as a label meaning "dissociative disorder that doesn't meet criteria of any other dissociative disorders", but this is asking about OSDD systems specifically - OSDD-1).
37%, 54 people said “Yes; I feel like OSDD-1 and DID shouldn't exist as separate diagnoses, there should be one diagnosis of DID for anyone that constitutes as being a "system" (meaning a person with DID/OSDD in this context)”
21.2%, 31 people said “No; OSDD-1 and DID systems should remain separate diagnoses”
18.5%, 27 people said “I think the term 'systems' includes people with other "parts-based" disorders/experiences, such as those with cPTSD, BPD, etc.”
50%, 73 people said “I think the lines between "DID", "OSDD", "cPTSD", "PTSD" and more are much blurrier than people think”
30.1%, 44 people said “I think combining the two might make it even more difficult to really "define" what a system "truly" is, since it's already difficult to really be able to see a true, hard line between DID/OSDD and PTSD, cPTSD, etc.”
18.2%, 27 people (also) gave other responses)
Q12: As a polyfragmented system, do you feel that your experiences are different from those who are not polyfragmented? - (146 responses)
38.4%, 56 people said “Yes, I believe my polyfragmented experiences are different from those who are not polyfragmented”
56.2%, 82 people said “I believe that some things are similar, other things are different”
0%, No one said “No, I don't believe my experiences are really much different from those who are not polyfragmented”
5.5%, 8 people gave other responses
(This is all that I can currently fit in this post! No like I literally have reached the photo limit lmfao. I will be reblogging with the rest of the responses!)
Having faith in God makes people beautiful. I'm not saying others are not beautiful, I am saying, I find beauty in people with faith. They don't believe in randomness, in coincidence, beauty that has no purpose. They believe instead in love, creation, a plan. That they were chosen, that the earth was DESIGNED. Sue me, I find that beautiful, I find that positive, I find that romantic.
Hey Let’s go that’s the first thing we thought too and for us august month it’s kinda a bit sad month for us but this year because of this feels more positive yeah also we like change lyrics so changed the lyrics to “I can see us dancing in the sunlight august washed away like the morning rain” and we posted about that song in august too sorry this is long just was like wait a sec I’m not the only one🎶 8/04/2024
BABE WAKE UP
IT'S AUGUST. YOU KNOW WHAT THAT MEANS???
ON LOOP, BABE 🫶🫶🫶
After about a year of having Simply Plural, I finally organised it beyond a few scattered categories
Role (with a toilet paper roll, bc why not), goes to this, which then breaks into alter lists.
Syskids breaks into age groups (I love the term syskids sm it's so cute... and i really hope it's not a endogen term)
Interests/hyperfixations breaks into multiple tags so we can see who shares interests.
Almost all alters are in at least two categories :)
"some sort of cryptid" is eternally going to make me grin a lot of our alters have non-human traits (it's a long standing way we process lol) but we don't know what to call them... cryptid it is 🤣
on 8/01 Isaac🖤 & Steven💚 are officially together awww 🥰 , I kinda was hesitant to share this hence didn’t share until now but they what to so yeah and from June to August it’s kinda a trauma months so having a anniversary might be a positive you know :) & Starlight is their official song 🎵 they kinda told me when listening to this the first time from the album 💿 Red♥️
8/03/2024
Recently more communication with different Parts sometimes it’s a lot but this reminding Us to work together 😊
7-30-2024 | Practice Devo | Acts 2:42-47
“Look for ways to work together towards a common goal”
God Knows Exactly What I Need :)
Haha 😂
This is Steven Grant
7/27/2024 Today’s Movie 🎥 is (500) Days of Summer ☀️🍂 (2009) when watching like StudioBinder Film 🎞️ videos this movie 🍿 gets mentioned a lot so thought to watch it🩷 I like how God✝️ turns the Bad to Good✨