I Hope Everyone With Alopecia, Trichotillomania, Pattern Balding, And Other Types Of Hair Loss Has An

I hope everyone with alopecia, trichotillomania, pattern balding, and other types of hair loss has an amazing day

hey actually can we stop treating hair loss or absence in media like it’s either a huge joke or a horrible tragedy? please? because i’m getting really sick of hairlessness (whether partial or total) constantly being depicted like it’s unnatural and strange—especially when it comes to afab or feminine people, but also just in general! and this applies to short hair, too, or generally ‘weird’ haircuts, by the way.

stop using a person’s hair (or lack thereof) as the butt of your jokes or the basis of your tragedy. until mainstream media starts accurately and explicitly depicting people with conditions like alopecia (something which should be normalized but has been made shameful by the standards media and society perpetuates), it should not and does not have the right to decide the narrative of their lives.

people are absolutely EVIL about the boundaries of “picky eaters”. no, they do not have to try it. yes, they can know they don’t like it without having eaten it before. no, they probably have not suddenly grown a taste for the food they’ve said they hate. no, they probably are not going to like it in the Special Way This One Place Cooks It. yes, you are being a bad friend if you try to “trick” them into eating it anyway

me when the disability disables me: oh what the fuck? this sucks. what the hell man!

“but it wasn’t that bad”

did it hurt? did you feel scared? unsafe? were you embarrassed? humiliated? terrified? did you feel confused on why? does it keep you up at night? do you avoid being in a similar situation? did you cry? did you want to cry? who told you it wasn’t that bad?

Sometimes us chronically ill/disabled folk will make the choice to have a day out when we know what the end result will be. We'll go out and have fun knowing we'll be stuck in bed for the next several days.

Even if we take it slow

Even if we only do low-impact activities

Even if we're mindful of our bodies and super duper extra careful

We'll still be recovering for a while.

That doesn't mean it wasn't worth it. It means we weighed the risks and rewards and made a choice. Most of the time I'm at home. But sometimes I'll go out and return with a flare up and some good memories. And that's okay too.